Special package arrived! This loveable little girl has dreams to be the next Darci Lynne one day. She loves her new ventriloquist puppets and art supplies. River is such a strong girl with hopes and dreams for the future! She is a joy to be around and brings a smile to everyone's face. Stay strong and dream big River!
Brooke Miller, Age 9, suffers from Cerebral Palsy, Epilepsy, and Aicardi Syndrome. We granted her family some ways they could spend time together. The best part of meeting Brooke is when she kept reaching out to grab my hand. I could feel her love. And have you ever seen a cuter smile?!
"I am still all amazed at the impact this little girl has on our community. Brooke was all about the attention and was trying to hold Neeley’s hand. She could feel the love and joy in the air. I’ve said it before and I’ll say it again, we couldn’t live this medical life with all its heartache and disappointments without the tender mercies that keep on coming. This girl is LOVE and people can feel it. Thank you Neeley for being an angel in Brooke’s life. We can’t wait to share the pictures of our memories we will make together!! THANK YOU Neeley🥰❤️🥰❤️#brookiethebrave #neelyschronicjoyfoundation #specialneeds #aicardisydrome #epilepsywarrior @ Queen Creek, Arizona" -Brittany (Brooke's Mom)
I had the amazing privilege of meeting the sweetest and strongest girl. Hadlee has fought diabetes almost her entire life. I was so excited to bring her a gift basket and the news of gymnastics lessons! She deserves all the joy in the world. Read more about Hadlee below from her mom's eyes.
"Hadlee Jo Brown, age 7 is a happy, playful, creative, and very helpful little girl. She loves horses, dogs and kittens, and one day hopes to be a veterinarian. She loves to swim, ride bikes and is an excellent reader.
When Hadlee Jo was 13 months old, she got very sick one weekend and couldn’t stop throwing up. She was admitted into the children’s hospital in a dka state. She spent a week in the nicu and was a fighter to get her blood sugars regulated. Because of her age and the extremely small doses of insulin she required, they were unable to dose by small injections. Her little baby fingers and toes were black from the testing pricks required every hour. They were finally able to approve her for an insulin pump and we were allowed to go home and learn how to manage her new way of life. She still endures the finger pricks 12-15 times a day, site changes every 2-3 days, frequent blood draws, and a controlled diet.
Since the time of her diagnosis she has had her finger poked approximately 38,325 times, 852 site injection changes, used approximately 126 bottles of insulin, given lots of blood for testing, and taken all of it like a champ. Diabetic awareness is November 14th and in honor of her bravery we put blue strips of color in our hair, polish our nails bright blue and have a treat out for a blue Bahama Bucks!! Hadlee Jo is amazing and we are so fortunate to live in a time when medical knowledge and technology is consistently improving to assist her needs."
A few months ago we were able to send Maverick a care package while he was in the hospital getting surgery. We were finally able to meet him! When we arrived we found out it was the first day Maverick finally had permission to walk a little bit and we were so happy for him! I know firsthand how exciting it is to be able to walk again. We were then able to give Maverick swimming lessons that would bring him both joy and much needed physical therapy. My favorite part of running this foundation is seeing the strength of these young kids who have gone through so much! Maverick sure is one of them.